Programs that provide information about the etiology, symptoms, preventive measures, screening/diagnostic procedures, and/or methods of treatment or management for specific illnesses or disabling conditions; and/or which disseminate information about the latest research with regard to a particular illness or condition. Included are programs that maintain disease registries, i.e., databases that contain information about people who have been diagnosed with a specific type of disease and have been treated by a particular hospital or live within a particular geographic area. Registry information is used by public health authorities to identify and investigate unusual patterns of occurrence of the disease and can help communities plan for and deliver needed medical services.
| Service Name |
Description |
Location |
Program |
Agency |
|
AD/HD Informational Hotline
|
National Resource Center headquarters for ADHD, Attention Deficit Hyperactivity Disorder. Offers free reference brochures covering ADHD symptoms, diagnosis and treatments.
|
National |
National Resource Center on AD/HD
|
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
|
|
AIDS Education and Support Services
|
Provides AIDS education and support services. Located in Truckee, CA (530-550-2309)
|
National |
HIV Community Action Network (CAN)
|
HIV Community Action Network (CAN)
|
|
Alzheimer's Disease Education and Referral (ADEAR) Center
|
The Alzheimer's Disease Education and Referral (ADEAR) Center is a service of the National Institute on Aging (NIA), one of the Federal Government's National Institutes of Health and part of the U.S. Department of Health and Human Services. The NIA conducts and supports research about health issues for older people, and is the primary Federal agency for Alzheimer's disease research.
As a public, U.S. Government-funded resource, the ADEAR Center strives to be a current, comprehensive, unbiased source of information about Alzheimer's disease. All our information and materials about the search for causes, treatment, cures, and better diagnostic tools are carefully researched and thoroughly reviewed by NIA scientists and health communicators for accuracy and integrity.
The ADEAR Center has a staff of Information Specialists available to assist you by email or phone with:- Answers to your specific questions about AD,
- Free print or PDF publications about Alzheimer's Disease, including publications on symptoms, diagnosis, related disorders, risk factors, treatment, caregiving, home safety, and research
- Referrals to local supportive services
- Referrals to AD Centers specializing in research and diagnosis
- Clinical trial information
- Spanish language resources
- Access to the online AD Library for further reading
|
National |
Alzheimer's Disease Education and Referral (ADEAR) Center
|
National Institute on Aging
|
|
Blind or Visually Impaired Services & Information Hotline
|
To enable people who are blind or visually impaired to achieve equality of access and opportunity that will ensure freedom of choice in their lives. Also supplies non-medical information on visual impairments and blindness and answers queries regarding AFB services, products, publications, technology. Most of the volunteers are visually impaired or blind.
|
National |
American Foundation for the Blind Hotline
|
American Foundation for the Blind
|
|
Caregiver Support and Information
|
The Family Caregiver Alliance offers caregivers of persons with Alzheimer's Disease, stroke, traumatic brain injury, Parkinson's Disease, ALS, and related brain disorders practical information on topics such as care planning, stress relief, and community resources.
Publications: Fact sheets, newsletters and research studies.
Education & Training: Caregiver workshops, research presentations, professional training and public policy conferences.
National Center on Caregiving: A program of Family Caregiver Alliance, the NCC is a central source of information and technical assistance on caregiving and long-term-care for policy makers, health and service providers, media, program developers, funders and families. The center's research and publications document emerging trends and caregiver needs and services throughout the country.
The FCA Family Care Navigator: An online guide to help families locate publicly-funded caregiver support programs in all 50 states.
|
National |
Family Caregiver Alliance
|
Family Caregiver Alliance
|
|
Disabilities Publications in English and Spanish
|
Offers fact sheets on specific disabilities, state resource sheets, parents guides, resource lists, and much more. All publications on the Web site are free. If you'd like a copy in print, or you need one in an alternate format, call or email to request. For print copies of some publications, there is a small cost-recovery fee, but most publications are free of charge. (800-695-0285)
|
National |
National Dissemination Center for Children With Disabilities ( Formerly NICHCY)
|
National Dissemination Center For Children with Disabilities
|
|
Disability Information Tailored to Your Needs
|
Provides you with an information search that addresses your unique needs and concerns. Simply let them know what you need and they'll search their national resources and send you the information they find for free. (800-695-0285)
|
National |
National Dissemination Center for Children With Disabilities ( Formerly NICHCY)
|
National Dissemination Center For Children with Disabilities
|
|
Epilepsy Information
|
Toll-free number offering information about epilepsy and related issues. (800-332-1000)
|
National |
Epilepsy Foundation of America
|
Epilepsy Foundation of America
|
|
HIV/AIDS Education, Resources, Assistance for Health Care Workers
|
Education, resources and assistance to health care workers who care for people with HIV/AIDS. The program targets physicians, nurses, dentists, mental health and allied health practitioners throughout Nevada. Additionally, programs are developed to assist faculty at the School of Medicine with resources and up-to-date information for the education of medical students and residents in issues related to HIV/AIDS.
|
Washoe County |
Nevada Area AIDS Education and Training Center
|
University of Nevada, Reno
|
|
Knoledge is Power - Newly Diagnosed Series on MS
|
Provides MS definition, effects and issues presented by professionals in four two-hour sessions. "Knowledge is Power" is 10-part series mailed once a week.
|
Washoe County |
NMSS - Northern Nevada Office
|
National Multiple Sclerosis Society - Great Basin Sierra Chapter
|
|
National Eating Disorders Association (NEDA)
|
National Eating Disorders Association (NEDA) supports individuals and families affected by eating disorders, and serves as a catalyst for prevention, cures and access to quality care.
Overcoming an eating disorder takes professional help, but it is also important to have a strong support team. Whether you have been personally affected by an eating disorder or care about someone who has, NEDA's programs and services are designed to help you find the help and support you need.
|
National |
National Eating Disorders Association (NEDA)
|
National Eating Disorders Association (NEDA)
|
|
National Herpes Hotline
|
Provides accurate information and appropriate referrals to anyone concerned about herpes. Trained Health Communication Specialists are available to address questions related to transmission, prevention and treatment of herpes simplex virus (HSV). The NHH also provides support for emotional issues surrounding herpes such as self-esteem and partner communication. You can also receive answers to your herpes questions through email at herpesnet@ashastd.org. (919-361-8488)
|
National |
National Herpes Resource Center
|
American Social Health Association
|
|
Parkinson's Disease Information
|
Hotline for information on Parkinson's Disease.
|
Washoe County |
American Parkinson's Disease Association
|
American Parkinson's Disease Association (APDA)
|
|
Reliable and Accurate Lupus Information
|
The Lupus Foundation of America (LFA) is a reliable and accurate source of information on lupus. LFA has brochures written by leading experts in the field of lupus, as well as approved literature that offers more in-depth information about the disease.
|
National |
Lupus Foundation of America, Inc.
|
Lupus Foundation of America, Inc.
|
|
Respite Care for Families
|
Camp Lotsafun allows special needs children, teens and adults to participate in camping activities while giving parents and caregivers the opportunity to enjoy respite care.
Families with children, teens, and adults with disabilities are in desperate need of respite services to provide relief for the families and caregivers and to provide age appropriate recreational and social opportunities for the participants. Due to the additional requirements of a child with a disability, families identify respite care as a basic need. Parents of a child with a disability experience amplified levels of stress due to the increased demands a child with a disability places on the family. Siblings of a family member with a disability experience stress and often receive less attention due to the additional needs of their sibling. Camp Lotsafun allows families and caregivers to take a break from the daily routine of caregiving.
|
Washoe County |
Camp Lotsafun
|
Camp Lotsafun/Special Recreation Services, Inc.
|
|
Spinal Cord Injuries and Paralysis Information
|
Hotline for information on spinal cord injuries and paralysis. (800-225-0292)
|
National |
American Paralysis Association
|
American Paralysis Association
|
|
Stroke Services
|
Provides support and information for individuals who have suffered a stroke. (800-553-6321)
|
National |
Stroke Network
|
American Stroke Association
|
